Understanding Loss and Grief in SCN8A: Navigating Challenges and Finding Support [Video]

Part 1 of TCSF’s 2024 Meaningful Change series

Families living with an SCN8A diagnosis frequently are confronted with experiences of deep loss and grief, both during the child’s life and after. There are many types of loss and grief that are common to our community, but which often are not well understood outside of the medically complex world. We will be discussing these experiences, talking about the importance of self-care, and highlighting the ongoing support programs that TCSF offers for SCN8A families.

Learn more about the Meaningful Change series on our website:
https://www.thecutesyndrome.com/meaningfulchangeseries.html