Mom says at-home treatment for Spinal Muscular Atrophy boosted daughters care [Video]

PORTLAND, Ore. (KOIN) – August is Spinal Muscular Atrophy awareness month, and the disease’s first ever at-home treatment is having a major impact.

SMA is a rare nerve disorder that affects motor functions such as breathing, swallowing and walking. Until recently, there were no approved oral treatments for SMA. Now there’s Evrysdi.

‘Hoarder conditions’ made fight against deadly SE Portland house fire difficult

Alyssa Ahrens of Estacada joined KOIN 6’s AM Extra to discuss her daughter Lily Jane, one of the patients undergoing this novel treatment.

More information about SMA and the treatment can be found on Evrysdi’s website.

Watch the video player above to see Ahren’s interview.

Copyright 2024 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.

For the latest news, weather, sports, and streaming video, head to KOIN.com.