Family believes coverage found for treatment of twins with SMA [Video]

Days after the story of newborn twins from St. Joseph, Missouri, born with a rare condition, went viral nationally after they were denied life-changing treatment, the family says they’re in the process of securing coverage for that treatment. The source of that coverage has been, and continues to be, a pain point for the family of Eli and Easton Reed. The boys graduated from the neonatal intensive care unit at St. Luke’s Hospital in Kansas City and headed home to St. Joseph earlier this week. Days after they were born, Eli and Easton were diagnosed with a rare condition. The condition is one that, without proper treatment and medication, means their life expectancy is less than two years: spinal muscular atrophy. SMA is a genetic condition that affects nerves and muscles, causing progressive weakness and wasting. A gut punch for any new parents, the matter was made worse when they …